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The Netherlands is set to make a huge investment in biomedical research

The Netherlands is set to make a huge investment in biomedical research

A patient-led petition asked the Dutch parliament to tackle ME properly. It instructed the Government to take action, which eventually led to the Dutch health research agency recommending a €25m biomedical research programme. Patients are playing a central role in the process. The Dutch national health research agency ZonMw is proposing spending around €25m (£23m, $29m) on exclusively biomedical research over the next ten years. The Dutch government looks set to accept the proposal, once the final version is submitted,…

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UK spends £3 million on the world’s biggest ME/CFS study

UK spends £3 million on the world’s biggest ME/CFS study

£3.2m of government money will fund DecodeME, the world’s biggest ME/CFS study, which aims to recruit 20,000 patients. It will analyse DNA differences between those with and without ME/CFS to help find its causes. Patients are at the heart of the study. Things are changing: ME/CFS gets the full-page treatment in a national paper tody.. The Times reports (paywall) that UK health-research funders are giving £3.2 million to create DecodeME, the world’s largest ME/CFS study. And patients will be at…

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The best evidence yet that immune system problems can cause ME/CFS?

The best evidence yet that immune system problems can cause ME/CFS?

Human leucocytes Antigen (HLA) proteins play an essential role in helping the immune system to recognise pathogens. This new research is easily the best study yet of HLA alleles (gene variants) in ME/CFS. It finds links between alleles of at least two HLA genes and ME/CFS. And since the illness can’t change (HLA) DNA, the link must be that the alleles must play a causal role in ME/CFS. So this evidence that the immune system plays a causal role for…

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(Not ME/CFS.) The coronavirus report behind the big shifts in policy by UK and US governments

(Not ME/CFS.) The coronavirus report behind the big shifts in policy by UK and US governments

Until very recently, the US and UK governments were taking a relatively gentle approach to controlling the new coronavirus epidemic – compared with most other governments around the world. A very recent report from UK academics shows that the strategy would probably have led to a huge number of deaths — well over a million in the US. The report is based on a detailed model using information from many sources. This blog explains how the model works, what it…

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Prof Leonard Jason
Leonard Jason research finds that many young people have ME/CFS

Leonard Jason research finds that many young people have ME/CFS

UPDATED: Feb 15.2.20 A new study finds that 0.75%, or 1 in 130 young people, have ME.CFS – a higher rate than for adults. Only 5% of the young people already had a diagnosis. Prevalence increased rapidly as children moved into adolescence. And ME/CFS appears to be more common among African-American and Hispanic young people than among whites. How do you find out how common an illness is when it is hard to diagnose, most doctors know little about it…

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Sign up! Your support could help win funding for a game-changing ME/CFS study

Sign up! Your support could help win funding for a game-changing ME/CFS study

Researchers and patients are about to submit an application to the UK’s two big medical research funders for a 20,000-patient genetic study. The team want people with ME to sign up to show funders that the community backs the study and that large numbers of people are ready to join it. Your action today could help the world’s largest ME/CFS genetics study win funding – and could make a huge difference for patients, helping to identify biological causes of the…

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