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For faster progress in ME/CFS research, funders and researchers need to treat patients as partners, not subjects

For faster progress in ME/CFS research, funders and researchers need to treat patients as partners, not subjects

Publicly funded research aims to benefit patients and the best way to make sure it does is for researchers and funders to partner with patients. This will ensure research prioritises what matters to patients. It will lead to more effective research. And it will help ensure that research delivers benefits for patients rather than simply “success” for researchers. Two studies underway showcase this approach, which should become the “new normal”. Why do charities and (via the Government) taxpayers fund medical…

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Sign up! Your support could help win funding for a game-changing ME/CFS study

Sign up! Your support could help win funding for a game-changing ME/CFS study

Researchers and patients are about to submit an application to the UK’s two big medical research funders for a 20,000-patient genetic study. The team want people with ME to sign up to show funders that the community backs the study and that large numbers of people are ready to join it. Your action today could help the world’s largest ME/CFS genetics study win funding – and could make a huge difference for patients, helping to identify biological causes of the…

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A brightening future: the state of ME/CFS research

A brightening future: the state of ME/CFS research

OPINION Although there are no treatments for ME/CFS on the horizon, things are looking up thanks to recent findings and a substantial increase in the amount of high-quality research. The field still needs much more funding. Do you remember the buzz around rituximab? Oncologists Dr Fluge and Professor Mella had noticed something interesting when they treated their cancer patients who also had ME/CFS with the cancer drug rituximab: the patients’ ME/CFS symptoms improved dramatically. In 2011, Fluge and Mella’s small…

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