For faster progress in ME/CFS research, funders and researchers need to treat patients as partners, not subjects
Publicly funded research aims to benefit patients and the best way to make sure it does is for researchers and funders to partner with patients. This will ensure research prioritises what matters to patients. It will lead to more effective research. And it will help ensure that research delivers benefits for patients rather than simply “success” for researchers. Two studies underway showcase this approach, which should become the “new normal”. Why do charities and (via the Government) taxpayers fund medical…