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Author: Simon McGrath

Leonard Jason research finds that many young people have ME/CFS

Leonard Jason research finds that many young people have ME/CFS

UPDATED: Feb 15.2.20 A new study finds that 0.75%, or 1 in 130 young people, have ME.CFS – a higher rate than for adults. Only 5% of the young people already had a diagnosis. Prevalence increased rapidly as children moved into adolescence. And ME/CFS appears to be more common among African-American and Hispanic young people than among whites. How do you find out how common an illness is when it is hard to diagnose, most doctors know little about it…

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Sign up! Your support could help win funding for a game-changing ME/CFS study

Sign up! Your support could help win funding for a game-changing ME/CFS study

Researchers and patients are about to submit an application to the UK’s two big medical research funders for a 20,000-patient genetic study. The team want people with ME to sign up to show funders that the community backs the study and that large numbers of people are ready to join it. Your action today could help the world’s largest ME/CFS genetics study win funding – and could make a huge difference for patients, helping to identify biological causes of the…

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Latest from Ron Davis: more evidence of “something in the blood”

Latest from Ron Davis: more evidence of “something in the blood”

More clues are pointing to a role for blood plasma in ME/CFS. Ron Davis recently presented data showing that ME/CFS cells behave normally in the nanoneedle test IF they are tested in healthy plasma. Also, red blood cells from ME/CFS patients are not as deformable as those from healthy people — but researchers only see the difference when patient’s cells are tested in their own plasma. Plus, a bigger and better pathogen hunt and another drug candidate emerges from nanoneedle…

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Stanford symposium: the potential of smartphones to better understand diseases, including ME/CFS

Stanford symposium: the potential of smartphones to better understand diseases, including ME/CFS

“We think smartphones will be the most important health tool in future”, said Dr Michael Snyder at the recent Stanford ME/CFS symposium. Snyder heads up the Stanford Centre for Genomics and Precision Medicine, as well as the Genetics Department at Stanford University. His presentation highlighted the potential of technologies to monitor health and better understand diseases – including ME/CFS. Snyder’s work on personal, data-driven medicine kicked off with a landmark paper in 2012 (which wasn’t covered in his talk). This…

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Bold plans for two big biomedical research projects

Bold plans for two big biomedical research projects

The ME/CFS Biomedical Partnership, led by Prof Chris Ponting and Dr Luis Nacul, plan a huge genetic study and a major expansion of the UK ME/CFS biobank. The partnership will give patients and their representatives a major role in planning and running the project. The genetic research, a genome-wide association study, would need to recruit 20,000 people with ME/CFS – and the researchers know they can only do with the support of the patient the community. A new research team…

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Launch of Canadian research network makes a big statement about M.E.

Launch of Canadian research network makes a big statement about M.E.

The Canadian government has announced a modest $1.4 million investment in a new research network and delivered a big message: ME is a serious illness, deserves respect (“Let’s remove the insult from this injury”) and needs more biomedical research. The network, led by Professor Alain Moreau, will set up a national patient cohort that will include objective data on patients’ posts-exertional malaise. It will initially run three studies, including a virus hunt. And it will boost Canadian research capacity, e.g….

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